Cerebral palsy (CP) is a term used to describe a group of disabilities that
affect a child’s ability to move as a result of birth injury to the brain. CP is
a permanent but non-progressive condition that doesn’t get worse as a child
grows into adulthood. Except in cases where a babies born with serious health
problems, CP is not a life-threatening disability and most infants diagnosed
with it live normal life spans.
The main factors for life expectancy in cerebral palsy are gross motor
function and feeding. Children who are fully ambulatory and who self-feed have
life expectancies that are not dramatically less than normal. Less significant
factors include fine motor function , cognitive function, epilepsy.
Type of cerebral palsy. The most common type of cerebral palsy is the spastic
form, which is characterized by rigid muscle tone . Less common are the athetoid
type, characterized by continual slow movements and the dyskinetic type , or
mixed types are also possible. It is sometimes speculated that the different
types are associated with differences in life expectancy. However, in
unpublished research our group did not find any support for this notion, once
severity of disabilities, as measured by level of function, is taken into
account. For the estimation of life expectancy, by far the most useful
classification is the pattern of disability.
The main sources of data for research on life expectancy in cerebral palsy
are databases maintained by Professor Jane Hutton and her colleagues in the
UK,2-6 and our California developmental disabilities database.In addition there
are a few other studies from other countries/regions, such as Canadian study of
Crichton13 and the Western Australian study of Blair. The research suggests that
when children with comparable disabilities are compared, the resulting prognoses
for life expectancy are similar.This point has sometimes been misunderstood,
because the California database is able to identify children with exceptionally
severe patterns of disabilities who have lower life expectancies than groups of
children in other studies with less severe disabilities.
Life Expectancy With Epilepsy
Most people with epilepsy lead outwardly normal lives. Approximately 80
percent can be significantly helped by modern therapies, and some may go months
or years between seizures. However, the condition can and does affect daily life
for people with epilepsy, their family, and their friends. People with severe
seizures that resist treatment have, on average, a shorter life expectancy and
an increased risk of cognitive impairment, particularly if the seizures
developed in early childhood. These impairments may be related to the underlying
conditions that cause epilepsy or toepilepsy treatment rather than the epilepsy
itself.
All children with epilepsy should have a health plan on file at their school
which tells teachers what to do if the child seizures during the school day
which might include supporting the child, giving emergency medications, calling
the parents and in some cases calling 911. Parents should work with the school
system to find reasonable ways to handle any special educational or
environmental supports their child may have.
Having epilepsy does increase the risk that a child or adult might have
adjustment or mental health concerns. In some cases these issue relate to the
epilepsy itself, the underlying condition causing the epilepsy, the medications
used to treat the epilepsy or adjusting to the chronic condition of epilepsy.
Sometimes individuals with epilepsy may have to cope with misperceptions about
epilepsy by individuals in society which might create problems in the work
place, in school or socially. Counseling services can help families cope with
epilepsy in a positive manner. Epilepsy support groups also can help by giving
people with epilepsy and their family members’ ways to share their experiences,
frustrations, as well as tips for coping with the disorder.
People with epilepsy or other handicaps in the United States cannot be denied
employment or access to any educational, recreational, or other activity because
of their seizures. However, studies have shown that a lower percentage of
individuals with epilepsy do complete high, obtain a college degree or are
employed than in individuals without epilepsy. Some studies have been criticized
as having a “referral bias” meaning they assessed these things in a group of
individuals with more severe epilepsy. Studies focused on individuals with
epilepsy in general society have been much more positive in terms of the
educational and employment success of individuals with epilepsy.
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